TREATIN Project

Advancing knowledge for patients with titin-related centronuclear myopathy through the TREATIN project

[November 8, 2024, Stuttgart and Pine Brook, NJ ] – ZNM – Zusammen Stark! e. V., in collaboration with Team Titin, is pleased to share the encouraging results of the first year of the TREATIN project (Trial REAdiness for tiTIN-related centronuclear myopathies). Led by Dr. Anna Sarkozy and Prof. Giovanni Baranello from Great Ormond Street Hospital in London, the TREATIN natural history study is helping to deepen the understanding of titin-related centronuclear myopathy (TTN-RM) and providing a basis for future clinical trials.