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Startseite » About us » Vision / Mission

Vision / Mission

Vision

We dream of a world in which ZNM is curable and ZNM patients have the best possible quality of life and life expectancy.
In this we are a living network supported by those affected and their relatives, science and research, medicine and others.
We inspire new projects that strengthen the exchange of knowledge and hope between all at an international level.

Mission

We work together to connect ourselves and other sufferers and relatives and show them the many possibilities that living with ZNM offers. We are also committed to ensuring that those affected receive the best possible treatment by providing comprehensive information and support to doctors and therapists. At an international level, we promote the exchange of knowledge and invest in research to find new cures and treatment options.

A picture of the annual family gathering 2023. On a white staircase leading into a spacious auditorium, many families stand close together and raise their arms in jubilation