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Beiträge

3,000 euros for ZNM – Zusammen Stark! e.V. in Stuttgart

We are proud and sincerely grateful to have been supported with 3,000 euros this week as part of the Mitmachen Ehrensache thank-you campaign in Stuttgart! The cheque handover on March 25 at the Jugendhaus Mitte in Stuttgart was a special moment full of appreciation, encounters and active social commitment.This support will be used for research…

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Thank you, 2025. Welcome, 2026.

2025 was a year full of encounters, commitment and joint steps forward for ZNM – Zusammen Stark! e.V. Family conference – exchange, closeness and cohesion Berner Prize – recognition for commitment and heart Supporting research – hope for tomorrow Fundraising campaigns – so much commitment and solidarity Changes to the Management Board – new impetus,…

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Christmas greetings for Boxing Day

On the second day of Christmas, Aart sends you his warmest Christmas greetings. He is part of ZNM – Zusammen Stark! e.V. with great commitment and a lot of heart and would like to use these quiet days to say thank you – for cohesion, support and trust. The Christmas season invites you to pause,…

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Merry Christmas

Mareen sends her warmest greetings to you all on on Christmas Day. With a lot of heart and commitment, she is committed to the concerns of ZNM – Zusammen Stark! e.V. and would like to use these special days to say thank you – for community, trust and support. Christmas is a time of warmth,…

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RTL telethon – we were there!

On November 21, Finn Luca, Michel, Finja and Finn Thiemann took part in the 30th RTL telethon – and our association ZNM – Zusammen Stark e. V. was supported with €4,359! We received a very warm welcome and were even able to talk to Pascal Hens, Peter Maffay, the RTL team and Wolfram Kons. An…

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4th Advent: Children’s courage

This video shows what touches us deeply every day: Children with centronuclear myopathies (CNM) who go through life with incredible courage, strength and joie de vivre despite major challenges. Courage that is quiet – and yet so strong Smiles that give hope Little fighters with huge hearts Each of these children has their own story.…

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3rd Advent: 10 years in review

Strong together – today and every day This video shows what we at ZNM – Zusammen Stark! e.V. are all about: Cohesion Hope Research Families that support each other We are committed to helping people with centronuclear myopathies (CNM) and their families – with heart, dedication and the firm belief that together we can make…

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2nd Advent: ZNM families in the magic of Christmas

Advent is a time of lights, hope and solidarity. As ZNM – Zusammen Stark! e. V. we wish all families, supporters and companions moments of peace, warmth and confidence. Together we are stronger – today and every day. #ZNMTogetherStrong#2Advent#Advent season Hope Together RareDiseases ThankYouFromHeart

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Advent: Our 1st board member Aart den Hollander in the video

Our first board member, Aart den Hollander, has recorded a short video in which he presents his motivation, his priorities and his thoughts on the work at ZNM – Zusammen Stark e. V.. Aart has been a member of the Board for several months now and has shown great commitment during this time. With his…

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Change in the Executive Board: Thank you & welcome!

It is with gratitude and appreciation that we bid farewell to our former Chairman of the Board Holger Fischer and our former Treasurer Frank Schulte and say thank you from the bottom of our hearts for their great commitment, valuable time and tireless efforts for ZNM – Zusammen Stark! e.V. Special thanks go to Mareen…

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