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Ben from Ingolstadt

Hello, my name is Ben and I was born in May 2019. I live with my parents Beate and Ralf in Ingolstadt.

I am a bright and friendly rascal who has the MTM1 gene gene.

Ben on the swing in the garden.
Ben on the swing in the garden.
Ben watches the marble run on the table in front of him very closely.
Ben watches the marble run very closely.
Ben in a car on a trip in the snow.
A trip to the snow.
The Leuthold family laughs into the camera.
The Leuthold family laughs into the camera.

Since January 2023, I have had a tracheostoma through which I am permanently ventilated. I attended a crèche when I was two years old and now I go to an inclusive kindergarten. A carer always accompanies me here. I really enjoy being and playing with the other children.

I love doing puzzles or playing with my cars. My favorite thing to play with is my Hubelino marble run.

Status 2023