Ella

Hello,

My name is Ella and I was born prematurely at the end of 2021.

For a long time, my symptoms were blamed on being a premature baby until I was diagnosed with titinopathy at the beginning of 2024. I am a cheerful, strong-willed and very bright mouse who likes to get up to lots of nonsense. I also go to a lovely nursery as an inclusive child and have already made lots of friends there to play with.

Regardless of whether I’m a bit wobbly and keep falling over, together with my dog Hektor I bravely conquer the world and that’s wonderful.

We are glad that the association Zusammen Stark exists and that we have found the opportunity to exchange ideas with other affected people/families.