Levi

Hi,

My name is Levi and I was born on 21.08.2021 with the genetic defect MTM1.

I live with my 2 sisters Alexandra (18 years) and Zarina (9 years) and my mom Natascha and dad Erik in Wiesbaden.

In the beginning, I could only move my eyes and my arms a little. I train very hard every day, can now sit on my own and also eat independently, and I really enjoy it.

In my first year of life, I had around 12 bouts of pneumonia. With a PEG and nocturnal ventilation and, above all, the support of my family and great night nurses, I get the help I need to get through the stupid colds better.

I also go to kindergarten, which I really enjoy.

Apart from that, I’m just a normal, curious, cheeky boy who likes Christmas trees, flowers and monsters.

I have many dreams and I have many goals: one of them is to be able to run and be happy.

I’m really looking forward to Bad Nauheim, to seeing my friends big and small.

Your Levi💙