Transparency

Transparent Civil Society Initiative

In April 2021, ZNM – Zusammen Stark! e. V. joined the Transparent Civil Society Initiative and has since been entitled to display this logo on its website. By signing the self-commitment declaration, we, like almost 1,500 other organizations, undertake to publish the statutes, the names of the key decision-makers and information on the source of funds, use of funds and personnel structure centrally and always up to date.

Name, registered office, address and year of foundation

ZNM – Together Strong! e. V. ,
Registered office: Stuttgart
Address: c/o Dr. Holger Fischer
Käte-Hamburger-Weg 8, 70569 Stuttgart
info@znm-zusammenstark.org
Year founded: 2015

Complete articles of association and information on the organization’s objectives

Here you can find our complete Articles of Association (as of 2018). You can find our goals and our mission on our “Association page” under “Our goal”. In the 2021 strategy workshop, we defined the “Purpose”, “Vision” and “Mission” of our association by consensus. You can find detailed information here. You can find the current articles of association here.

Information on tax concessions

The statutes of our association fulfill the requirements of §§ 51, 59, 60 and 61 of the tax code according to the decision of the Stuttgart tax office. Our association is therefore recognized as a non-profit organization and can issue donation receipts for donations and membership fees. This is confirmed in the current notice of exemption dated 21.03.2023 by the Stuttgart Tax Office – Corporations. ZNM – Zusammen Stark! e. V. is registered under tax no. 99018/60576 assessed at the Stuttgart corporate tax office

Name and function of key decision-makers

Board of Directors:
Chairman of the Executive Board: Dr. Holger Fischer
Deputy Chairwoman of the Management Board: Mareen Bockstette
Treasurer: Frank Schulte

Activity report

Here is the current activity report for 2023 (for previous years, see Annual Report 2022, Annual Report 2021, Annual Report 2020, Annual Report 2019, Annual Report 2018, Annual Report 2016)

Personnel structure

All members of the association work on a voluntary basis. See Articles of Association. Since 1.11.2022, the association has filled a 50% position as “Assistant to the Executive Board” with a full-time employee.

Information on the use of funds

see annual report2023

Corporate affiliation with third parties

ZNM – Zusammen Stark! e. V. is a (contributing) member of

• Eurordis – European Rare Deseases

• German Society for Muscular Dystrophy

• Bundesverband Selbsthilfe Körperbehinderter e. V.

• Kindernetzwerk e. V.

ZNM – Zusammen Stark! e. V. is also a member of

• Treat-NMD

• Orphanet

• Nakos (National Contact and Information Center for the Encouragement and Support of Self-Help Groups)

Names of persons whose annual payments account for more than 10% of the total annual budget

For 2023, the flat-rate funding from the Association of Statutory Health Insurance Funds (vdek) in accordance with Section 20h SGB V (€ 30,000) and the vdek project funding for the website (€ 21,494.16) exceeded more than 10% of the total annual budget.

Corporate affiliation with third parties

As at 20.04.2024, hf