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Wir lassen zur Feier des Tages auf der Familienkonferenz Luftballons in den Vereins-Farben steigen

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Our history

A lot has happened since the ZNM-Zusammen Stark! association was founded:

We founded the ZNM – Zusammen Stark! e.V. association for myotubular myopathy and other centronuclear myopathies at the family reunion in Göttingen in July 2015. A lot has happened since then…


We have grown and now have over 250 members and 160 supporting members behind us.

As a self-help organization, our main goal is to connect those affected and their families and to support each other in everyday life.

This is mainly done through our annual family conference, webinars and our closed Facebook support group. We are also actively investing in research to find a treatment for these diseases. This year, the third research project was successfully launched thanks to donations from the association.